One of my very good childhood friends fourteen-month old daughter was recently diagnosed with Alternating Hemiplegia of Childhood (“AHC”). Only about 400 people in the world have been diagnosed with this disease and therefore there is very limited funding devoted to researching this condition, and possible treatments for a cure.
When I learned of my friend’s daughters condition, it hit home, and hard. You always hear on the radio, or see on TV, these people who have children that suffer from these kinds of conditions. While my heart always goes out to them, when those people are your friends, the feeling is multiplied tenfold.
My friend’s sister has devoted herself to a mission called “Running for Del”. She has committed to running 1000 miles from January 1, 2010 until October 21, 2010 to help raise awareness about AHC. She has started a blog so that supporters can follow along with her on her journey beginning in just 4 days and learn more about AHC.
Please check out her blog for more information. If you have the means to make a donation to help this cause, please do so. If you don’t, please at least take a few moments to read her blog and learn a little more about Delaney, Gara, and AHC. Knowledge is power!
www.runningfordel.com
5 years ago
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